Wednesday, 24 October 2012


Formal statement from Stockholm County Council
Councillor Stig Nyman states –
Procurement of intensive training
for children and young people
with disabilities 
Yesterday afternoon I was interviewed by TV4 Stockholm and by ABC, on the new procurement of intensive training for children with cerebral palsy and other diagnoses. I also met a group of patients and families who were concerned about the contract and wanted to express their views to me. According to media reports, the Move and Walk is to appeal and it is important that the process be carried out.

These are the reasons why we have chosen to make this statement:
  • My goal is to improve care for these patients, and we are also making several major initiatives
  • We are increasing the scope of care efforts so that more children may receive care.
  • The patients who had been excluded from treatment, due to the limited size of [M&W's] business, will now have a better opportunity to be intensively trained through an expanded service.
  • No reduction is being made, but the alliance will increase its investment by 700,000.
  • No child needs to interrupt the treatment. This will now be offered by Rehab Station Stockholm. from April next year.
  • Care is provided according to the National Board's national guidelines
  • Rehab Station Stockholm is a renowned player with which the County Council has had long and successful collaboration.
  • Rehab Station Stockholm had significantly better scores in the contract when it comes to offering good and safe care
  • This focus on the education of children, parents and personal assistants is an exciting development that will benefit both patients and their families.

As yet this statement has attracted no replies
For new readers
Private conductive CE company Move & Walk has been contracted by Stockholm County Council to provide a habilitation service for children with cerebral palsy. The arrangement is now coming to its programmed end and the Council has announced that the next three-year contract will go to a non-conductive company offering a 'traditional' service.
As soon as this news came out Lars Mullback and a small group of parents were already protesting publicly over this, in a press release of 17 October –
Stockholm County Council is to withdraw this special education for 300 cerebral palsied children. Instead it is to procure intensive physiotherapy.
Yesterday saw a small demonstration outside Stockholm's County Hall:

And Lars, along with conductive mother Ola Berge, published an opinion piece in the national newspaper Svenska Dagbladet: the politicians have chosen to procure intense training instead of Conductive Education, a special education concepts just for cerebral palsy. Move & Walk (M & W) has lost the contract to Rehab Station Stockholm (RSS).

When we called RSS and asked for training for cerebral palsy, they said they are not working with Cerebral Palsy and not with children either. Three different managers testified, however, that they will learn more about children and CP now that they got the contract, and that it will be "as good as for adults."

Formal appeal against this decision has to be submitted by 26 October


(2012) Barn med hjärnskador mister ovärderlig hjälp, Svenska Dagbladet, 24 October

Mullback, L. (2012) Föräldrar protesterar – Katastrof för våra bar, Press release

Nyman, S. (2012) Upphandlingen av intensivträning för barn och ungdomar med rörelsehinder

Earlier stories on Conductive World

Labels: , ,


Blogger Rony Schenker, OTR, PhD, Tsad Kadima, Israel said...

I didn't really know if I should write this cmment here or in the previous on outcome and processes measures, but as the two are interweaved as I see it I decided to publish here another proof that evidence matters, and this time from professional-families perspective.
The Cerebral Palsy Alliance is a well known and highly valued Australian organization which offers services to children, teenagers and adults with cerebral palsy, and their families and carers. Each of their services are designed to enhance the lives of people with cerebral palsy, to foster community participation and skill development. Research is an inseparate part of the service delivery. on their website, in a section for parents they write and I quote:
Questions to Consider
A web search for cerebral palsy will often result in a bewildering array of suggested interventions and solutions. When making decisions about interventions, there are some important questions to ask.

What does the intervention claim to do? What goal might it help achieve? Is there peer-reviewed scientific evidence on its effectiveness?
Who is it for? Is it designed for a child, teenager, adult, family members or people in their support network? Has it been specifically tested with people with cerebral palsy?
Where would the intervention be offered? At home, school, in the community?
When would it be offered? In a short intensive period or over a long period of time? Is this time commitment realistic?
What costs are associated with the intervention? Consider who is providing this intervention and what is their interest in it - financial, professional, personal and ethical?
How is the intervention evaluated? How are the outcomes measured and reported? Has a review date been set? Can the intervention be discontinued without penalty if it is not having the desired outcome?
Be aware

Approach new treatments with hopeful skepticism
Make sure that claims are backed up by solid research evidence
Some interventions may not work and some can even cause harm
Just because it has worked for others, doesn’t guarantee success for everyone
If you don’t see a positive result within a set time frame, it might be wise to reconsider your options."

If are a conductor, and a family ask you these questions, what would you reply?

Wednesday, 24 October 2012 at 17:32:00 BST  

Post a Comment

Subscribe to Post Comments [Atom]

<< Home